Shedding light on invisible struggles (written 05/12/2024)

Today marks an important day in our calendar - Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Day. We wish no one had to deal with these health issues, but are deeply grateful to all those who have shared their experience of ME/CFS, researched the condition, and found ways to manage symptoms. They have provided important insight and support to help others tackle post-viral conditions. 

Those in the Long COVID community recognize the overlap between ME/CFS, Long COVID, and other post-infection conditions. This is a moment to recognise the shared struggles and opportunities, and to amplify our voices, raise awareness, and stand in solidarity with those battling ME/CFS and related conditions. We hope that the wider post-viral community can work together to find solutions to help people to feel better. 

Shedding Light on Invisible Struggles
ME/CFS affects millions worldwide, yet it remains largely misunderstood and under-researched. As we acknowledge the challenges faced by those with ME/CFS, let's also recognize the similar hurdles endured by individuals grappling with Long COVID. The parallels between these conditions underscore the urgent need for greater awareness and research.

The Call for Research
Awareness serves as a catalyst for progress. While we need more research, let's also acknowledge the strides made in understanding these conditions. No matter how small, every step forward brings us closer to unraveling the complexities of ME/CFS and Long COVID.

Focusing on What We Know
Amidst the quest for deeper understanding, let's not overlook the power of what we already know. From pacing strategies to symptom management techniques, there are tangible ways to support individuals with ME/CFS and Long COVID. Let's continue to prioritize these interventions while remaining hopeful for further breakthrough discoveries.

Eyes Open for the Future
As we mark  ME/CFS Awareness Day, let's commit to monitoring advancements in research and treatment. Together, we can drive meaningful change and improve the lives of those affected by these debilitating conditions.

This is an important conversation, and no support is too little to make a difference.

Warmly,  
Katie & Andrea